Goshen News, Goshen, IN

State News

March 29, 2014

Lyme disease sufferer on an educational mission

(Continued)

"In 2012, my son Rowan suffered a tick bite and was given an ELISA (enzyme-linked immunosorbent assay) test that was negative," she said. "But when his symptoms grew worse, I insisted he get a Western blot blood test. It was sent to an independent lab and according to CDC standards, the test showed he had both Lyme disease and Bartonella."

Coleman Morse said several states have passed laws mandating that doctors tell patients that the Lyme disease testing they've received is unreliable. She said Virginia passed a law requiring doctors to tell patients who've tested negative for Lyme disease that they may actually have the disease.

Though there is no vaccine or cure for Lyme disease, symptoms can often be controlled if the proper treatment can be found and administered early.

"It varies from person to person," Coleman Morse said. "My son and I have found that a diet free of sugar, carbohydrates and gluten inhibits the bacteria's food source and also strengthens our immune systems."

Coleman Morse said because Lyme disease bacteria reproduce every 30 days, and because the bacteria can spread to vital organs, the earlier a person is diagnosed and treated, the better the outcome.

"There's a big controversy now about how long the tick must be on you to transmit the bacteria," she said. "For years, doctors said it has to be on you for 24 to 48 hours, but now some doctors are saying there is no safe window."

Coleman Morse said those with Lyme disease often face financial stress, because many of the most effective treatments for the disease are not covered by insurance.

"The guidelines that insurance companies use are established by the Infectious Diseases Society of America, which does not support the types of treatments that Lyme-literate doctors use," she said. "Some have even lost their license for practicing outside the society's guidelines."

Coleman Morse said she spends about $1,000 a month, out-of-pocket, for her IV antibiotics and oral medications. Family and friends have organized some fundraisers on her behalf to help her with those expenses.

___

Information from: The Herald Times, http://www.heraldtimesonline.com

Copyright 2014 The Associated Press. All rights reserved. This material may

Text Only
State News
Parade
Magazine

Click HERE to read all your Parade favorites including Hollywood Wire, Celebrity interviews and photo galleries, Food recipes and cooking tips, Games and lots more.
AP Video
Raw: Israel Bombs Multiple Targets in Gaza Veteran Creates Job During High Unemployment Raw: Cargo Craft Undocks From Space Station Widow: Jury Sent Big Tobacco a $23B Message New Orleans Plans to Recycle Cigarette Butts UN Security Council Calls for MH 17 Crash Probe Obama Bestows Medal of Honor on NH Veteran Texas Sending National Guard Troops to Border Hopkins to Pay $190M After Pelvic Exams Taped Foxx Cites Washington 'Circus Mirror' NASA Ceremony Honors Moon Walker Neil Armstrong Obama Voices Concern About Casualties in Mideast Diplomacy Intensifies Amid Mounting Gaza Toll AP Exclusive: American Beaten in Israel Speaks Obama Protects Gay, Transgender Workers Raw: Gaza Rescuers Search Rubble for Survivors Raw: International Team Inspects MH17 Bodies Raw: 25 Family Members Killed in Gaza Airstrike US Teen Beaten in Mideast Talks About Ordeal 'Weird Al' Is Wowed by Album's Success
Poll

Last weekend (July 12) the Goshen Parks Department held its Kid’s Try-athlon to promote childhood fitness and this week (July 18) the new bicycle trail is open to the fairgrounds in Goshen, offering residents a healthy way to get to the annual agriculture exposition. Have you joined the local fitness movement?

Yes, I work at eating healthy and exercising
No, I am happy with my fitness level
Changing my diet and exercise frequency is a work in progress
     View Results